Life Changes

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January to now almost April.  Last time I posted I said my new endocrinologist wanted to do further testing.  Well....we did it.  It was a stimulation lab test where I went into the infusion clinic and they gave me a medicine in my IV that is supposed to activate your own body's cortisol, to see if it's working.  According to the labs it is.  The endo wanted me to go off the steroids again without doing a taper.  I then had an appointment with the pharmacy team at the U of M (I have these every couple of months) and they couldn't believe a Dr. wouldn't taper off of steroids.  It wasn't long before I got a message from the pharmacist that she immediately called the endo, and I was to do a taper.  I am now off of them, so we will see!  Hopefully I can be off them for good!

A couple months ago I also ended up testing positive for Covid 🤦🏻‍♀️.  So, my ENT at the U who deals with my trach wanted to see me after to see how my trach looked.  We both thought it would be clogged and bad due to COVID.  To our surprise it was clear and looked excellent!  She once again said that I take such good care of it.  

Life changes have hit me once again.  The boys and I are back in the townhouses, which we love.  But, people who have health issues would understand when I have to think to myself, why me?  Is it the trach?  All the other health issues? My weight gain due to all the fluctuating of meds?  But, I do remind myself it's not me.  I tell myself I'm a strong fighter and should be able to get through anything after all I've been through!  I have THE BEST family and friends to support me.  Now, it's time for ME to focus on ME again.  And my boys!  I love to cook, and cook for people!  So, I just need to do that!  

We also got to bring one of the pugs with us!  Jefferson!  He is the best little boy that LOVES to snuggle with me every night ❤️

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