Its been a bit

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It's been a while and as I'm sitting here waiting to pick Jack up at school, I thought I would post an update.  I'm sure many of you saw on my Facebook posts that I've been having trouble with the steroids again, and being put back on high doses due to adrenal insufficiency I'm gaining weight again 😭😭.  It is literally so dam frustrating.  All I want is to get my trach out and not live with this anymore.  Fortunately, as my boyfriend reminds me, at least it's keeping you alive.  Yes, yes it is.  When I saw Dr. Gray this last time she asked me "why don't you want the trach?". My response?  "Who would want to live with one!". Through the tears that was the only response I could give her.  She then asked me to be part of a research study.  And maybe to talk to other people going through the same thing to offer support.  Of course I will.  Two days later I received a message on MyChart asking to be part of a different research study regarding lipids and having a heart attack.  So I'm going to get blood work done on Monday for the start of that.  One of the things I wanted to eventually come out of this was to be a motivator and help other people going through stuff like this.  I guess that comes from my CNA background, wanting to help people.  I have the best support system and I couldn't be more greatful for getting me through all of this 3 years later!  I did learn the hard way how important it is to take your prescribed medication, and now I always will have to carry this shot around with me.  
I am really excited to see all the leaves change color, although I'm not excited for cold weather.  Especially since my stach surgery I literally FREEZE all the time lol.  In mid October sometime we will be picking up our new Pug ❤️.  I'm truly excited for that.  George keeps me company and loves to nap with me when I get tired.  I will leave you with a pic of our new girl, Bunny! And of course George!

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