Probably time for an update here:)
Happy Memorial Day! I haven't updated on here in quite a while, so I figure it is time. So the surgeon that my ENT wanted to do my stomach surgery for my flap that isn't holding my stomach bile in doesn't take my insurance....of course with me nothing can be easy. So she asked him for his recommendation on who to do it. The doctor he recommended is at Marshfield Hospital, in Marshfield. Well my ENT said she doesn't know a thing about this doctor, and wouldn't have rights at that hospital she is going to look into another option. Because I am a complicated case (like I said, nothing can be easy with me) she wants someone she knows to do this surgery. Her original plan was going to possibly be to have the general surgeon do my stomach surgery and while I was still under do her part on my throat (kill two birds with one stone). She called on Thursday I believe and said she had a call into a surgeon she knows at Mayo, Rochester I believe. Of course then it was a holiday weekend, so I'm hoping and praying we hear something tomorrow!
I am going to pulmonary rehab again now 2 days a week! I have been increasing something almost every time I go whether it be minutes on machines or how fast I am going on the treadmill or increasing the weights I am lifting. The stomach surgery will probably be a harder recovery than the throat ones so they want me as strong as possible going in. I have been able to get outside more and walk which is super nice! We are still being very cautious about Covid and me or even Dad or Mom getting it. All three of us are at a very high risk of it taking us completely down, and possibly even death. I get that some people don't get it, which is fine. I don't judge, and for many it wouldn't affect them at all. I have control over me however. And, I wear two masks when going in public still :) One on my face covering my nose and mouth, and one over my trach. For the first time this weekend I went into a store. I went to Menards to get some plants. It was nice being out for the first time, but as I pulled into the parking lot I also found myself nervous. Even though, I knew I was being careful, it is still very nerve wrecking for me. It was nice to see everyone in that store with masks on though. It made it a little more comfortable. Also, people stayed their distance and when I got in there, a worker was sanitizing the cart right before he pushed it to me. That was AMAZING to see!
So, I posted on Facebook that I saw Dr. Adkins, an endocrinologist. I am seeing him now because of the long term use of the steroids (prednisone). He said because of this I am for sure adrenally insufficient (when I looked at the signs and symptoms of this it was me 100%). And, he is not comfortable taking me off of them at this point until more of my throat surgeries are done. So, here is the problem: I need to loose a lot of weight, but I seem to not be able to. This could be because of the adrenal thing (this is a symptom). It could be because I cant exercise as much as I was able to (well I weigh a lot more). And I need to have my throat surgeries to be able to exercise to my full potential, well I can't have my throat surgeries until I have my stomach surgery. Sometimes it seems like everywhere I turn its a dead end. But, I am so hopeful that this will all happen soon, when it is supposed to happen.
One more good thing that has happened is, tonight is my 2nd night of being home since I got my trach. We have a wood-stove, so when that was going I couldn't stay here because it would be WAY too dry for my trach. After my stomach surgery I will probably need more help again, so I will have to stay at mom and dads with Bud working. So, I will take it while I can. It's just nice to be home. I am SO INCREDIBLY BEYOND THANKFUL for all that my family and Bud and his family have done for me during this time. I honestly don't think I would have made it without any of them.
Well tomorrow is a therapy day, so I better get to sleep! I will update once we hear from the surgeon!
I am going to pulmonary rehab again now 2 days a week! I have been increasing something almost every time I go whether it be minutes on machines or how fast I am going on the treadmill or increasing the weights I am lifting. The stomach surgery will probably be a harder recovery than the throat ones so they want me as strong as possible going in. I have been able to get outside more and walk which is super nice! We are still being very cautious about Covid and me or even Dad or Mom getting it. All three of us are at a very high risk of it taking us completely down, and possibly even death. I get that some people don't get it, which is fine. I don't judge, and for many it wouldn't affect them at all. I have control over me however. And, I wear two masks when going in public still :) One on my face covering my nose and mouth, and one over my trach. For the first time this weekend I went into a store. I went to Menards to get some plants. It was nice being out for the first time, but as I pulled into the parking lot I also found myself nervous. Even though, I knew I was being careful, it is still very nerve wrecking for me. It was nice to see everyone in that store with masks on though. It made it a little more comfortable. Also, people stayed their distance and when I got in there, a worker was sanitizing the cart right before he pushed it to me. That was AMAZING to see!
So, I posted on Facebook that I saw Dr. Adkins, an endocrinologist. I am seeing him now because of the long term use of the steroids (prednisone). He said because of this I am for sure adrenally insufficient (when I looked at the signs and symptoms of this it was me 100%). And, he is not comfortable taking me off of them at this point until more of my throat surgeries are done. So, here is the problem: I need to loose a lot of weight, but I seem to not be able to. This could be because of the adrenal thing (this is a symptom). It could be because I cant exercise as much as I was able to (well I weigh a lot more). And I need to have my throat surgeries to be able to exercise to my full potential, well I can't have my throat surgeries until I have my stomach surgery. Sometimes it seems like everywhere I turn its a dead end. But, I am so hopeful that this will all happen soon, when it is supposed to happen.
One more good thing that has happened is, tonight is my 2nd night of being home since I got my trach. We have a wood-stove, so when that was going I couldn't stay here because it would be WAY too dry for my trach. After my stomach surgery I will probably need more help again, so I will have to stay at mom and dads with Bud working. So, I will take it while I can. It's just nice to be home. I am SO INCREDIBLY BEYOND THANKFUL for all that my family and Bud and his family have done for me during this time. I honestly don't think I would have made it without any of them.
Well tomorrow is a therapy day, so I better get to sleep! I will update once we hear from the surgeon!
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