Not the best patient 🤐

So, tomorrow will be 4 months since I got my trach.  It’s seems like I’ve had it for 4 years!  On the 11th it was 8 months since I got sick and was put on the vent!  Last night I couldn’t sleep so I jumped on Facebook and went back and read all the posts from people who were/are praying for me since I got sick!  Wow!  I have an army!  Now, during this pandemic my surgeries are on hold :(. And yes, I thought selfishly for a couple of days and thought to myself  “this needs to go away so I can have my surgeries!”  Well, a couple days later I had a little coming to Jesus talk with myself.  I have an airway, I can breathe, I tested negative for carona.  I wasn’t getting out of pajamas, I wasn’t putting on makeup or even combing my hair.  I was sick of gaining weight being on the Prednisone because I’m supposed to be loosing weight, so like the terrible patient I can be I quit taking it.  I figured well I’m completely closed already with no more surgery dates in sight.  Well that was the wrong choice of course like so many other times when I had come off it (with doctors orders) I stated getting so short of breath with ANYTHING I DID. Even just walking into the kitchen from the living room I would have to stop and get my breath.  So, I admitted to mom and Jen I went off it and that day I was back on it and am doing better.  I guess my breathing is more important than my weight :). So I got some new makeup, showered did my hair (well kind of) and yesterday for the first time in a while I felt good about myself.  Earlier this week we also received a call from my doctor who did my last surgery and when she took the old trach out they cultured the nasty stuff in it and came back as pseudomonas, which we already figured, and she wanted to start me on a new neb. Well....it was denied by insurance, so now I have to wait for a prior authorization to be done to hopefully get it covered.  We also got some new animals at grandma and grandpas!!!  We got some chickens, a duck and a couple geese.  This has been awesome for me also as I get exercise because I like to go out and check on them a couple times a day in the shed!  This weekend we will be getting a coop ready!!!  I can’t wait until it starts getting nicer out so I am able to go outside and walk around again!  I still am experiencing some short term memory problems so if I ask you the same question more than once, just call me Dory it’s okay😂.  Remember that new diet I have to follow?  Yup still doing it.  This means no red sauce or Alfredo sauce on pasta, no pizza sauce :(. But I’m surviving.  I can have pesto!!  Last night I even put together marinated chicken for supper tonight!

I know this is a long one but just wanted to update!  Everyone stay safe and I would just like to personally thank ALL the essential workers!!  I sure wish I was at the hospital helping, but for now I will just take care of the boys and animals :).