Has anyone suffered hair loss due to trauma, meds or autoimmune disease? Do you have any tips for me? I used to have such thick hair and these pics are after the 5th time of taking it off my brush and my fingers....
I figured I would update here and post the link on Facebook. That way if people want to read, they can just click the link...if not, they can just scroll on by. And if I forget something I can a little more easily look back through this. Today was another great day! It's Wednesday, surgery was Monday. Dr. Gray did stop in to see me in-between surgeries she had going on today. I asked her how many "C" rings she took out, and she said she honestly couldn't tell me because there was so much stenosis. So she said she took out about 5cm. Wow, that's quite a bit when you look at it lol. She also said how I'm doing really, really well. She wants to see me in clinic to scope me on Tuesday with possible discharge after that! I feel so incredibly grateful!!! I went for a lot of walks today. Yesterday my step count on my phone was like 835, today was over 3,000! I'm still having ...
The last two days had been something of a blur. I felt like I did nothing but sleep. Did labs, and cortisol levels were very low. So, endocrinology got involved and figured it was best I get on a low dose of steroids. So, today I'm more awake no nausea and got up for a walk! Thank goodness I got switched to a regular diet so I have a few more options for meals. But I do understand why they have you start on soft and bite sized. I think it would be very hard to swallow hard foods. Yesterday I got some visitors ❤️. Mom, Dad and Jen came. And, so did my friend Chelsea and her daughter! It's a nice break in the day. I have the absolute best nurses and aids here. Drs do rounds a couple times a day. This morning they said hopefully the cortisol levels won't keep me here any longer than the planned discharge Tuesday. So, fingers crossed it stays that day! The boys are enjoying som...
Today has seemed like kind of a lazy day for me. I feel like it was a day I needed to rest, and that's okay. I was up in my chair most of the day, but dozed off and on. I didy walks, and took one pretty hard nap in bed. I feel like I've been through so many of the dilation/tube exchange surgeries that I should just be able to pop right up after this one as well. I often need to remind myself that this was a WAY more extreme surgery lol. And, well I guess Im not as young as I once was. Today when I did one of my laps, I remembered showing my mom the first time I could walk around the nurses station after I got my trach put in. I could walk all the way around the desk and I could breathe, it was like it was the best thing in the whole world. Then, today I thought about that and I was like hey, I'm doing it now with NO trach and I can still breathe! It was an amazing thing to remember. I shared a picture with the...
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