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Showing posts from March, 2023

Life Changes

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January to now almost April.  Last time I posted I said my new endocrinologist wanted to do further testing.  Well....we did it.  It was a stimulation lab test where I went into the infusion clinic and they gave me a medicine in my IV that is supposed to activate your own body's cortisol, to see if it's working.  According to the labs it is.  The endo wanted me to go off the steroids again without doing a taper.  I then had an appointment with the pharmacy team at the U of M (I have these every couple of months) and they couldn't believe a Dr. wouldn't taper off of steroids.  It wasn't long before I got a message from the pharmacist that she immediately called the endo, and I was to do a taper.  I am now off of them, so we will see!  Hopefully I can be off them for good! A couple months ago I also ended up testing positive for Covid 🤦🏻‍♀️.  So, my ENT at the U who deals with my trach wanted to see me after to see how my trach looked....