Update as of right now
When I posed about my ENT contacting a provider she knew, I said it was at Mayo, Rochester. I was wrong, it was at the U of M. So, here is what I know as of right now: She spoke to an ENT she knows personally at the U and discussed my case with him in detail. This was his suggestion. He suggests a tracheal resection and possible gastric bypass. Two MAJOR surgeries. She asked me my thoughts. I have in the past looked up stuff on tracheal resection. Since my area of blockage is so "thin" but all the way across (thus blocking) I would be a good candidate for this. They would go in and literally take out that part of my trachea and reconnect the gap. I would probably be in a C-collar for a while, and recovery will be a while, but in all the statistics that I have looked up, it has worked! I am also in a group on Facebook for people with Idiopathic Subglotic Tracheal Stenosis, several people have had this surgery done on th...